Document Type

Thesis

Degree Name

Master of Science (MSc)

Department

Kinesiology

Faculty/School

Faculty of Science

First Advisor

Paula Fletcher

Advisor Role

Supervisor

Abstract

Objective: The majority (69%) of persons with dementia (PwD) in Canada reside at home, relying on support from family and/or friends that act as caregivers (CGs), a particularly stressful and time-consuming role (CIHI, 2018). While PwD wish to age in place, this group is at high risk of long-term care admission (Wiles et al., 2011; Huyer et al., 2020). This research examines the lived experiences of PwD and their CGs who are aging in place, using the social ecological model to provide a comprehensive understanding of the barriers to aging in place.

Methods: Phenomenology was the theoretical orientation used to guide this research to present an accurate depiction of lived experience. Backgrounds questionnaires were administered to prior for one-on-one semi-structured interviews, which were transcribed verbatim for analysis. Field notes, member checks, and triangulation were used to enhance the credibility of the study.

Results: Participants emphasized individuality associated with caregiving and dementia journeys. CGs cited positive and negative aspects of aging in place. Through analysis, three themes were developed: (1) “Pivot, pivot, pivot”, (2) They don’t make it easy, and (3) “Balancing act”.

Implications: Interviews provided knowledge concerning unmet needs and systematic issues faced by CGs and PwD, and their subsequent effect on care provision. Their stories provide a unique perspective of aging in place with dementia from those who experience it firsthand. Overall, these findings shed light on the need for reform in health care policies to address systemic barriers and sincerely promote aging in place for all persons.

Convocation Year

2024

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Available for download on Saturday, September 18, 2027

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