Document Type

Thesis

Degree Name

Master of Arts (MA)

Department

Psychology

Program Name/Specialization

Community Psychology

Faculty/School

Faculty of Arts

First Advisor

Dr. Melody Morton Ninomiya

Advisor Role

Supervisor

Abstract

Previous research has demonstrated that adults with fetal alcohol spectrum disorder (FASD) often lack support after reaching 18 years old because they are no longer eligible for the support they receive as children. However, very little is understood regarding the needs and strengths of adults with FASD as they transition into adulthood, and the current literature that does exist relies heavily on proxy- reports rather than from people with FASD directly. Therefore, to centre the voices of adults with FASD, this study aimed to incorporate the perspectives of adults with FASD (i.e., 19 years old or older) and people who support adults with FASD (i.e., caregivers, romantic partners, support workers) to 1) explore the experiences of individuals with FASD and people who support them in the transition to adulthood and 2) identify the factors there were positive facilitators or negative barriers for adults during this transitional period. I used a qualitative methodology to address the gaps in the literature. I conducted semi-structured interviews via Zoom video call software with adults with FASD and individuals supporting adults from anywhere in Canada to explore the phenomenon. The interviews provided insights into what adults with FASD experienced in the transition to adulthood, including their positive and negative childhood experiences, strategies and supports that were helpful for daily living, difficulties with daily living and support services, societal conditions that impact their transition, their strengths and weaknesses, and the adults and support people’s recommendations for strategies and supports to benefit the adult as they move into adulthood. The findings are being shared with key stakeholders in the field, including adults with FASD and their support people, organizations that support individuals with FASD, healthcare professionals, and government policymakers. It is important to share these insights with stakeholders to inform them about the needs and desires of adults with FASD during the transition period. Stakeholders can use this information to develop new approaches and services or adjust existing ones to better support individuals with FASD as they navigate this transition.

Convocation Year

2024

Convocation Season

Fall

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Available for download on Wednesday, August 25, 2027

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