Exploring the Lived Experiences of Daughters/ Daughters-in-Law Providing Primary Informal Care to Their Mothers/ Mothers-in-Law with Dementia
Master of Kinesiology (MKin)
Kinesiology and Physical Education
Faculty of Science
Dr. Paula Fletcher
As the senior population in Canada rises, more middle aged residents of Canada will find themselves taking on a caregiving role, often times for a parent with dementia. This research examines the lived experiences of daughters/daughters-in-law providing primary informal care to their mothers/mothers-in-law with dementia in order to understand the motivations, effects, and transitions within caregiving relationships.
Phenomenology was the theoretical orientation used to guide this research and captured individuals’ lived experiences. Background questionnaires were administered initially, followed by one-on-one semi-structured interviews which were transcribed verbatim upon completion for data analysis. Field notes, member checks, and triangulation were used to further enhance the credibility of the study.
From the analysis, four themes emerged: (1) “Master of none.”: The many roles of informal caregivers; (2) The face of dementia; (3) “What a life!?”; and (4)“Every so often you see a little bit of light.”: The silver linings. All of the women expressed experiencing a multitude of both positive and negative effects as a result of their caregiving experiences.
Informal caregivers play an integral role in the Canadian health care system. This study provides a glimpse into the hectic lives of these informal female filial dementia caregivers. Their stories can provide strength and hope for individuals who have provided care for family members with dementia in the past, in the present, or will do so in the future.
MacFarlane, Sarah, "Exploring the Lived Experiences of Daughters/ Daughters-in-Law Providing Primary Informal Care to Their Mothers/ Mothers-in-Law with Dementia" (2016). Theses and Dissertations (Comprehensive). 1974.
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